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Wonderful young lady with a super attitude!😊

My heart goes out to you. Im 71 and was diagnosed with scleroderma 10 years ago. It is progressing, I manage to stay positive most all the time.This young lady has been through alot, prayers for her❤❤❤❤❤❤

Thanks for sharing Barb!!🦋

A wise young lady, at 71 with progressing scleroderma, concentrating on things I love, nature, flowers, music, birds, going for rides in the country, and talking with God, keeps my mind off of my deteriorating condotion!!😊😊

Im 71, got diagnosed with Scleroderma 10 years ago. Despite living pretty healthy, my scleroderma is progressing and its a ROUGH journey, it feels like fire& pain 24/7...I keep my spirits up by talking to THE LORD, as I live in an area where there are no support groups, and the climate, north, is extreme on my scleroderma. Ive lost52 pounds in 4 years. God is my only support now, but Im HAPPY for those of you that do have a support system, or family!😊😊😊

Planet Ayurveda has the best treatment for Scleroderma. Their natural approach has given me significant relief. I’m so grateful for their effective and safe remedies.

Also, USE MITTENS !!!!

Another tool for Reynaud's sufferers with digital ulcers are the silicone spatulas. I use them in the car to release the seat belt and compress the control buttons on the dash.

This is wonderful! I am committed to do this everyday!

I’m so happy for Kim! God is good! My mom has CREST syndrome very badly and her scleroderma is affecting her esophagus. Does anyone have any direction for me to go to try to help her? Does anyone know how I can contact Dr. Shah? She’s in a terrible flare up and need help outside of what she can get here. 🙏 Thank you for any help you can provide!

I just developed hemifacial atrophy with morphea like plaque and I’ve been treated for late stage Lyme by both an infectious disease doc and Lyme-literate rheumatologist within the last three years. I live in US. Lyme specific bands were P39 and P28.

I was in the SCOT trial and was randomized patient 2 for cyclophosphamide! Still doing great!

Why was IBIO-100 discontinued?

I have lost family members to this awful thing,is there any hope has your research produced any???

This doctor is amazing

Thank you for your work

Hi beautiful! Is there anyway to find the video you did "Hallelujah.. Singing for Stem cells" 2:09 ? It was the most beautiful song I ever heard. I have Diffuse Scleroderma n I'm struggling. That song, you singing it, gave me hope and is so so very uplifting. God bless you and love from Pennsylvania ❤

I hate myself i look awful

I have symptoms of lupus together with dry eyes and mouth. Have to drink water when eating

I was wondering about linear morohia as far as making or at least helping the marks on the skin fade or dare I say disappear? I know it’s a long shot, but maybe not? Does anyone know about this or know where I could find studies or info? I haven’t watched this whole video yet, but I definitely will. Cannabis should be available to anyone that could benefit from it.

What about semaglutide?

I am from Austin.. Suffering for the past year and new.. Any suggestions on how to deal with this..

Just was diagnosed with morphea on my scalp. I never noticed when it was active but now I have the indentation. Need to go back to UT health for a follow up

Amanda, I’m from NJ too!

I am 69 yrs old and have it 22 years.

Good talk! Thank you!

Hello, what about just having antibodies SCL70, but to symptoms, great lung xray , good capillaroscopy?

Hi...Just Made...MY day... God BLESS YOU/I'LL B IN TOUCH...ME SCLE...20 YRS NOW/I'M TELL MYSELF TO KEEP ON ...KEEPN ON... I'LL B IN TOUCH...OK...UMADE MY... DAY ❤

❤❤❤ ty for sharing ur story and helping others. I'm in awe of u

Muy buena información para personal de salud, especialmente para médicos.

Wow, you have an amazing story! Thank you for sharing! 🎉Happy birthday🎂! Wishing you many more happy and uplifting ones! 💜💜🙏

WALMART IS A KILLER OF SMALL TOWNS. I understand that sometimes the discount prices are tempting, but once we lose the independent market in these small towns, we no longer have a choice of where we shop. Keep breathing 👍

Very inspiring story. I am also a Scleroderma Patient since 2018. I am doing well with my strong Will Power and mind control. Thank you so much. God bless you with healthy and long life. 🙏

Yes, probiotics really help reduce the symptomps ... I've been battling scleroderma, overlap with vasculitis, rheumatoid arthritis, and polymyositis for more than 8 years ... This are things that help me go on remission : - Avoid gluten, refined sugar, seed oil (fried stuff) - rich probiotics everyday, i use kimchi, kefir, yoghurt - bone broth helps - i often use moringa, turmeric, curcuma powder drink it like a tea, half tablespoon - vitamin D + K2 supplement - magnesium & potassium rich food - avoid any inflammation triggers - deep and slow breathing technique helps to calm down 🙏

Nowhere near me to get proper treatment. I live in Omaha, AR.

morphia I’ve had it since I was a child and it looks like a burn mark people say or big bruise and it grows and shrinks but it never goes away and I’ve noticed when it grows my back in that area gets so itchy and when it shrinks it feels like the tissues and the muscles tighten up and it feels like it’s squeezing my ribs.

I justvgot diagnosed with it this pass week thank you

How do I get Dr Freeds email?

❤❤ strength and love to all

She is not a rheumatologist and shouldn’t be talk of something she is not sure or qualified for and not on you tube to scary people unnecessary

Are you a rheumatologist? if not No mentioned lie on you tube to scary people

It’s not true

I got scleroderma since 2008 I’m 70 now I saw the best rheumatologist in the country where I live I saw three of them None of the three mention or link scleroderma with any type of cancer not rheumatologist and not my family doctor first time I hear this no sense

Ty for careing

No me fue productivo el video! No explicó sino q se dedicó a leer y lo hacia tan rápido q no no le entendí nada!

I miss you Tracy…

I've been taking a boatload of collagen thinking it would help my nail fungus or psoriasis not sure which it is but it's just gotten worse and worse and I've gotten cysts in a recent odd fibrous papule... I think I'm going to cut the collagen supplement out totally maybe fast a bit.

Amen I feel like , I'm more experience, especially one Dr accused me of drug seeking and exaggerating my pain, "Really"!!!!!!!!!!!!!!

How do I get connected,? God bless everyone of you, I have cried happy tears for all of you and perseverance,I live in panic and fear, and I'm sooo so k and in pain constant, nothing helps but narcotics and I still feel the si k and pain ,not easy for me, for I have a teenage daughter, I lost our thrift store that I was only working to be able to work through symptoms w out being fired, I take it bad constantly trying to walk and hard time getting to the Man appts I'm supposed to be at constant, for showing atriel sclerosis, aorta, fibrosis of lung severe severe hand pain,huge and blue, I'm tiny and went down to 90 ibs ,my chest constrict it hurts , my stomach hurts ,my adranal gland started calcinosis,joints, neck , hips ,I cry so much,I. Only turn 50 ,I cry and worry , people treat me bad In community,alot and family,I'm for Ed to look ve in mean condition and doubt , family feels I would be dead by now I'f that bad, I cry and stress and can't get to store many weeks,my family treats as if you wanted to get out that I would,I cry constant , can't get to my kids or store miss many appts ,I used to be a fighter , I wish I could get a transplant

23 years i too have suffered with this illness and i am not recognizable. Sadly i have doctors that are not passionate to further their education because i am the only patient they have. I have been to many Ssc specialists over the years just to be told there is nothing. 23 years of this and there is nothing...nothing !!